December 17, 2010

The Fight Is Over

More than two years ago when we first noticed this little angel snoring in his sleep. Since that time, we never stopped searching for the answer why he sleep that way. And I started the search, here on myLot.

His battle started when he was still a year and two months old. That was the time when he lost his breathing on night. We almost lost him.

We had been to a lot of doctors too. But only this July that we got a confirmation from a specialist, that he has sleep apnea.

The fight continues, not only for him but also for me to find the right source of funds, for medication and the surgery. You gave strength not to give up, with your support, your prayers, and with a little share of your blessings.

Then they came to the rescue. TV5 Alagang Kapatid, a local TV program that aims to give hope and help the needy with their medical problems promised to help us look for the right institution for Zayzay' operation.

Three months ago when the program brought us here in Manila and with us everytime Zayzay have to be in St. Luke's Medical Center for check-up, tests and until the actual operation.

December 6, 2010. The date for what I called the BIG DAY for Zyruz Jayneil came. My wife was in tears seeing him crying and in pain, while she left the O.R. But the proceedings run smoothly, in just an hour.

Days passed, and now he sleeps normally, without snoring, without stop breathing, without the apnea. He eats better now than ever before. And he's back to his hyper-activity, and for being a menace to his playmates.

And now, we can say The Fight is Over...

So, Thank God for we have YOU...

December 13, 2010

Record of Operation

BILATERAL TONSILLECTOMY WITH LATERAL PHARYNGOPLASTY

Patient placed in supine position with neck hyperextended under general endotracheal anesthesia.
Asepsis, antisepsis and sterile draping done.
Dingmann mouth gag then carefully applied.
Intraoperative findings: grade 3 bilateral faucial tonsils.
Right anterior tonsillar pillar was infiltrated with a 1:100,000 solution of epinephrine & 2% lidocaine, after which it was incised using electrocautery.
Plane of dissection identified.
Right tonsil was dissected from its bed using electrocautery until fully delivered.
Hemostasis assured.
Same procedure was done on the Left tonsil.
The nasopharynx was visualized through a mirror, the adenoid was unremarkable without any sign of hyperplasia. No airway obstruction noted.
Washing done, Hemostasis assured.
Posterior right and left tonsillar pillars were sutured together with the anterior tonsillar pillar resulting in further widening of oral airway.
Dingmann mouth gag carefully withdrawn.
Specimen sent for examination.
Procedure was well tolerated. 

December 11, 2010

Finally, The Fight Is OVer

Photos during the confinement at St. Luke's Medical Center in Quezon City. From December 5 to 8, 2010.




























November 13, 2010

Sleep Test at St. Luke's Medical Center

Our Sleep Test done at St. Luke's Medical Center in Quezon City on November 10, 2010.










October 3, 2010

Alagang Kapatid Episode 104

This Saturday, TV5 Alagang Kapatid featured Laughter Yoga and Sleep Apnea;.
 
One of the reasons I am so excited about this episode is, we are featured in the segment talking about this Sleep Disorder. And the topic even featured our blogsite.






Head Louse and Nit Problem


Head Louse and Nit Problem Continued + Laughter Yoga


Laughter Yoga + Sleep Apnea


Sleep Apnea

September 10, 2010

Magiting Supports TV5's Alagang Kapatid

I just want to repost this one from Facebook account of TV5's Alagang Kapatid. We fully support this program as we believe, this is one program that will help the less fortunate Filipinos with their health problems.

As the saying goes, Health is Wealth. So how do we protect ourselves from various threat to our well being? By being armed with proper knowledge and information.

Alagang Kapatid” is a documentary and feature show that tackles various health concerns and medical developments. The show aims to be of service to the Filipino public by providing information related to health, and offer hope and inspiration to those in need of medical assistance, and during emergency situations.

The show’s pilot episode will start airing this coming September 11 and will be continuing its service every Saturday from four to five in the afternoon, it will be hosted by veteran broadcast journalist Ms. Cheryl Cosim.

To inform the public and save lives, that’s our mission. Because for every health crisis, we offer the gift of knowledge and healing; the gift of “Alagang Kapatid


Just like Magiting or Zayzay, there are so many children who needs medical assistance. And we hope, with this program, many lives will be changed.

September 7, 2010

The Fight Will Soon Be Over

At four months, we first noticed Zayzay snores like a grown-up. Most people have said that it is just normal for babies to snore; they call them “noisy breathers”. And because it was the first time we see a baby snores loud, we were even amused to hear the sound coming out from his mouth.

For most babies, it is common to get sick. Colds, cough and fever are just common sickness that little angles get, as they grow older. Again, as most people say, this is normal for them. And of course, there is asthma.

At one year and four months, Zayzay had a terrible sickness. He had cough, fever and asthma. We have to rush him to the hospital in the middle of the night. He stopped breathing and the color of his skin already changed. Doctors said he had terrible asthma at that time. So he had to stay in the hospital for three days.

This stop breathing experience, the snoring, the hospital confinement, made me think that it is not normal or it is just asthma. I know doctors know very well because they are professionals and they should know. But parents should know better when it comes to the feelings with their children, how they feel when they are sick. They are always by their side.

It’s not that I don’t believe to the doctors, but given the benefit of the doubt, I researched the Internet why my son sleeps that way. And for over two years, I doubted my son has asthma, but has sleep apnea.

Every time my son gets sick and we consult the doctors, I always try to tell them that I doubted our son has sleep apnea. But most of them, the family doctor, the pediatrician, the neurologist, have told me that sleep apnea is something that could not be told easily. It will take a lot of time and money to diagnose our child with sleep apnea.

But we never stopped looking for the right professionals who would feel the way we feel about our son. Who will talk about sleep apnea with us deeply. And we are fortunate that we found them.

The pediatric and pulmonologist we met for the first time had a lot of experiences with children who had problems with their sleeps. So we talked a lot and she listened. She referred us to a surgeon whom she worked many times with patients, children with sleeping problems. These two doctors confirmed that our son is actually having obstructive sleep apnea.

Now comes the big problem with me as the father. The surgeon has recommended surgery to remove his tonsils and adenoids. These are the part of his throat that makes our son snore and stop breathing. And this operation, he said, needs a lot of money to be done.

I seek help to raise funds. I talked a lot with my friends and relatives. I talked a lot on the Internet, on social networking sites and other online communities that I joined. It took a lot of courage and humility to do it. It took me days and nights in front of the computer, trying to reach more people, more hearts, who will feel helping us with our son.

Prayers came in and so as assistance. They came from different places of the world, different races and religions. And they came in as overwhelming but isn’t enough. Even though, I thank God for the support that we have got from those people.

But what made our hearts, as parents, feel better after a lot of sacrifices for our son is the message from a television program who got interested to help us. Hopefully, with this show, our problem with our son will come to an end.

Thanks Be To God.

August 30, 2010

We Actually Shot Scenes For The TV Program

As I have stated recently, one program researcher of a TV show from Manila contacted us and informed us of their interest with our case. And they actually been here this weekend.

On Saturday, we have shot scenes while Zyruz is asleep, how we take care of him when apnea attacks, and a lot more. On Sunday, we shot scenes while he is at play, interviewed us and some scenes while we are supposedly leaving the house for Manila.

We were supposedly leaving today, as per conversation with the PR. But she said, there are some conflicts with the schedule of the doctors. But she assured, we will be going to Manila in September, for check-up and possible operation.

The PR also said, they will do all they can do to help us including the operation, they will try to convince the doctors.

By this time, we are not only excited to go to Manila for the check-up and possible operation but also excited to see our story on television.

Here's the trailer of the said television show.


August 26, 2010

Hopefully, This Is The Answer To Our Prayers.

I have a conversation today with a program researcher (PR) of a TV station based in Manila. She said, they are interested with the case of my son. I am not quite sure if they will be featuring our story, but as our conversation went on, we are probably be flying to Manila very very soon.

It is not still clear at this moment if their program will shoulder everything, every expenses when we are in Manila. But she told me that they will shoulder our fares and they already have communications with St. Luke's Hospital.

So, let's cross our fingers. Hopefully, this is the fruit of our labor, the answer to all our prayers.



Thank You All!


August 24, 2010

Excessive Daytime Sleepiness Can Be Fatal

One of the symptoms common to people with Sleep Apnea is the excessive daytime sleepiness (EDS). Common but something that should be given proper attention.

Narcolepsy, as Wikipedia describes, is a chronic sleep disorder. A person could experience extreme fatigue and possibly falls asleep at inappropriate time, such as while at work or at school.

Narcoleptics usually experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which is often confused with insomnia.

I have learned from one of my friends on myLot, that one person died just because she was a narcoleptic. She fell asleep at the wheel of her car.

references: Wikipedia and myLot

Sleep Apnea Is A Very Serious Concern

This is what most of my friends from myLot believe. They are mostly common people who don't have medical background or education. But they have at least one family member that snores at sleep, so they understand the danger of apnea, what it could cause if the patient have not given proper attention.

What makes us feel sad regarding Sleep Apnea is that, not everyone is aware of this kind of health condition. Some will even have a great laugh when they see one person snoring so loudly.

The worst part of this is, even some medical professionals do not take this condition very serious. Yes, they know about apnea and even believe this will lead to some more serious health problems, like heart attack, hypertension, etc. But they don't move fast, so easy and calm to tell you, "don't be hysteric or be rattled." Won't you feel that way if you see your child suffering?

One friend also said, "A lot of people are uneducated about the condition so it's up to you to explain to them and how it's dire that your child gets the help he needs."

So I hope I can reach more people with this writing, and let them understand how serious Sleep Apnea is.